September 15, 2008

A Sister Siren needs you

Filed under: Thoughts — admin @ 12:45 pm

Dear friends and family,

Back in June I asked you to help a dear Sister when she fell ill and was hospitalized.
The need is still great. Bel’s condition is going to be one of life-long recovery. Months
of hospitalization and specialized nursing care have been adding up. Household bills
still need to be paid and Bel’s business has been moldering without her since her illness
started.

We, her friends and adoptive family, have banded together to organize a benefit auction
to help raise funds to pay for some of the multiple expenses. If you can attend the
benefit, we’d love to have you there. If you can donate items for the auction, time or
money, we would be thrilled if you contacted either myself, Robynn or Kitten for details.
Even if you can’t donate anything right now you can still help by forwarding this message
to as many people as you can letting them know that Bel needs their help.

Below is the most recent information from Robynn concerning the auction. Thanks for
reading.

Blessings,
Lyon

Greetings Everyone,

For some of you this will be new news. For others this will be an update. As many
know, one of our own, Beltana of Sona & Bellawyk, is in trouble. Approximately three
months ago she contracted Guilliame Barre Syndrome. GBS has no known cause or cure. It
is a neuro-muscular disorder which disables and attempts to destroy the body’s nervous
system, which effectively paralyzes the body, often including the diaphragm which
controls one’s ability to breath. GBS also permanently, severely impairs the immune
system.

Beltana got lucky. A doctor recognized her illness and started aggressive treatment
relatively early into the disease. Beltana started out paralyzed from the neck down, and
has bravely battled her way back and is now learning to walk again. Her recovery will be
a life long battle. As I said, her immune system is permanently compromised. What for
you and I would be a simple common cold can easily turn into pneumonia for Bel.
Fortunately, Bel also happens to be extremely determined and stubborn when it comes to
facing adversity. This aspect only serves to help her recovery. This is where the
pagain community, friends, and loved ones come in.

Beltana has been finally discharged from St. Johns, Springfield. She is now in
treatment at the Missouri Rehab Center, 600 Main - Rm. 504, Mount Vernon, MO 65712. Any
cards, letters, or flowers sent will help her keep her spirits up as she will be reminded
that she is not alone, that we love her and are thinking of her.

Next is the benefit auction. It is official now. It will be held Saturday November 8
at IAFF Local 73, 4271 Delor, St. Louis, MO 63116, from 7PM - 11 PM. We are working on
donations of food to be served, and there will be live entertainment.

For those of you who have already sent donations, thank you very much. For those of
you have already made plans to donate, I also extend my thanks. Please send all
remaining donations to R. Hope 5235A Delor, St. Louis, MO 63109. If the package will
require a signature or need to be picked up from the post office or UPS, please address
any shipments to D. Hope. Also, please extend the word…. so far a good number of
wonderful donations are being acquired due to word of mouth.

I would also like to thank Mr. Peter Zettl of Zettl Photography, a very dear and long
time friend of mine, who has generously agreed to help with producing the flyers to
promote this event.

Thank you to others such as Jenadrienne Charlesworth who have helped promote this event
and thus have helped in acquiring donations as well as publicizing the auction.

None of this would be possible without all of you. Beltana is my Sister, one of the
few for whom I would lay down my life. I cannot begin to express my gratitude to
everyone who are making donations, publicizing, and working so hard to help Beltana. If
anyone has any ideas toward helping Bel, please contact me directly or contact our
Sister, Kristen Hanks at flykittin@yahoo.com.

For those of you who cannot make this event, we understand. We appreciate your kind
support. For those of you who will be able to be there, I look forward to being able to
thank you in person. If you will be coming in from out of town and need a place to stay,
please let us know in advance. Again, thank you ever so much for your support.

Blessed Be,
Robynn (aka Darryl E. Hope EMT-P)
314 351-0935

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